Given all the challenges, what has living together been like? Given the time and the circumstances, I think we've adjusted and adapted very well. But because it’s a Democrat doing it, I’m afraid they’re going to make excuses for it. If Trump did that, everyone would lose their minds. Like now he wants to bring in Neera Tanden, who has advocated for cutting social security before. I’m worried that people will get complacent and give Biden a pass for things they wouldn’t give Trump a pass for. What is your outlook on that front-in terms of the things you’re fighting for-in light of the new administration? The fight is definitely not over. In 2017, the then CEO made about $1,100 every hour. The extra hours that I asked for would cost my health insurance provider about $1,300 extra a month. My ultimate goal is to change that rubric to make sure that everybody in my situation gets the amount of hours that they need. And, you know, statistically, those relationships don’t work out, either.Īnd you weren't able to secure that extra care before moving out? No, I lost my court case, on the grounds that based on New Jersey rulings of how disabled someone is, I'm not disabled enough.
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And I understand that that can be scary to a lot of people. I have to lay everything out on the table right away. I don’t have a choice to not be completely vulnerable. I heard you mention once that the biggest thing was that both of you were willing to take a chance on each other from the get-go, that she was willing to accept everything that dating you meant and came with. She was obviously really understanding of everything.
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I was obviously up front about my disability right away. I don’t know, we were just great at communicating. I didn’t have to worry about going to New York, which is always just a hassle in itself. What changed when you met your girlfriend? What was the difference with her, the initial spark, that you hadn’t had prior to that? She lived close by, so that definitely made transportation a lot easier.
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“She's helped me learn how to share my space. What was the position that wound up working the best? Basically, I’m on my back, and I have my knees up to my chest and she’s sitting facing me, if that makes sense at all. It took a couple of tries to find that position. So it took us a couple of times to figure it out.
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How long did it take for you and your girlfriend to start approaching sexual relations? Well, another thing in the disabled community is that because our bodies are kind of distorted, it’s hard to get at that right position. I know so many guys that go through that and just didn't know what to do about it. For me there have been nights where the pain would literally wake me up. It's more of a medical concern than it is just sexual release. A lot of times it can be a sex worker.Īfter that episode came out, I had a lot of discussions with disabled people facing the same issue. So a lot of times, people try to get help from their personal-care assistants or nurses. When you sit all day long, it hurts even more. That's something that a lot of disabled people go through-it's just not really that talked about.
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That reminds me a little of an episode of Ramy where, after a night at the strip club, Ramy helps your character masturbate. If AOC reads this, I would love to have a meeting with her.” “I want to be the guy for disability policy. “You know how Jon Stewart was the guy for 9/11 first responders?” he says. Steve has shone a light on these issues through his role on Hulu's Ramy, where he stars as himself alongside his real-life best friend, Ramy Youssef, and he'll be turning up the brightness in the new A24-produced show he's working on for Apple TV+ about navigating the world with a disability. That they want to be with you for who you are, not because they feel obligated.” And then there are the systemic obstacles that Steve and Victoria continue to face as a couple: the discriminatory government policies that made it difficult for them to move in together last year and make it virtually impossible for them to get married now. “Trusting that when they say they love you, they mean it. “I had to overcome my own fears,” he says. Before Steve met Victoria on OkCupid almost seven years ago, his dating life was “basically nonexistent.” The 30-year-old actor and comedian was born with muscular dystrophy, which meant his search for love was complicated in both a practical sense-needing someone to drive and accompany him on dates ensuring venues were wheelchair accessible coming home early so that his parents, his caregivers, could “get their sleep too”-and a psychological one.